Tuesday, December 16, 2008
Many thanks to everyone who came out for the CyTunes launch party. It was amazing to be in that place, shoulder to shoulder with all of these terrific folks who didn't skip a beat when it came time to act. Let's not rest yet though. CyTunes will continue to need your help.
If you play music, submit a song. If you listen to music, check back frequently to see what new stuff has been added. If you know people at labels or in bands, encourage and then shame them into participating. CyTunes needs to grow. Only good can come from that. Work your magic, people! Let's set the bar high with this one. The possibilities are endless.
Monday, October 27, 2008
The Sheps Center for Health Services Research (UNC Chapel Hill) where I work has raised about $1200 for Cy's bills at a bake and craft sale that I helped organize. We still have some very nice craft items left for sale - 2 child-sized knit hats, some necklaces and earrings, a pair of placemats, and lots of handmade cards and envelopes. If you have any ideas for venues to sell these remaining items, please let me know.
Tuesday, October 21, 2008
(My contact info.)
Thursday, October 16, 2008
Tonight from 9-12 on WXYC 89.3 FM or online at WXYC.org.
Don't forget this event at Nightlight on Friday:
Come out for B-Team DJs for Cy -- a benefit and memorial for Cy Rawls. Money collected at the door will go to the Rawls family.
Nate AKA DJ
Oct. 17th, 2008, 9 pm
Nightlight Bar and Club
405.5 W. Rosemary St.
Chapel Hill, NC
Tuesday, October 14, 2008
Graveside services will be held Wednesday, October 15, at 11:00 AM,
Maplewood Cemetery, Annex B, Section Two, Durham, NC.
Family will be available for visitation following the service.
Flowers are acceptable or memorials may be made to Calvary United
Methodist Church, 304 East Trinity Avenue, Durham, NC 27701.
Please keep us in your prayers and thoughts during the coming days.
Tuesday, October 7, 2008
I had to stop after six screens of Google links because I'm at work.
Monday, October 6, 2008
With the assistance of Tom Boman, Gary Sobba, Ryan Kormann, and Clay Broughton at Learfield Sports, I got an mp3 clip of Woody Durham's memorial to Cy that broadcast just before halftime of the UNC/Connecticut football game this past Saturday.
I've posted it here: http://tinyurl.com/3hqe8l
Sunday, October 5, 2008
Here is a funeral update from Cy's folks:
Absolutely everyone is welcomed to attend this service in Jacksonville.
The Jacksonville City Cemetery is located at the corner of Hargett Street and Highway 24 East. The drive time from [the Triangle] will probably be around 2 1/2 hours.
Friday, October 3, 2008
Here's what she wrote:
I have an installation called The Listening Garden up in Durham Central Park [on Foster Street across from the Farmer's Market] until Monday morning. It is a beautiful place to sit and reflect, and there are comfortable rocking chairs to hang out in. I decided to put a memory book for Cy in the garden and to dedicate the installation to him. If you'd like to go leave Cy or his family a note or memento, I will take the book and anything you leave to his family at the memorial service. I'll also take photos if anyone puts a little shrine or anything up for him, and will give the photos to his family.
I really felt an expansion of my interpretation of life and consciousness while sitting there thinking about Cy today. I felt like he was in the wind...more could be said, but probably sounds cheesy in writing, so I'll stop.
It is with great sadness and sorrow that we must inform everyone that CY passed away this morning at Duke University Medical Center/Durham, NC.
Visitation and Funeral Arrangements are as follows:
Sunday, October 5, 2008 from 5:00PM to 8:00PM
Hall-Wynne Funeral Home
1113 West Main Street
Durham, NC 27701
Monday, October 6, 2008
Jacksonville City Cemetery
A memorial service is being planned for a later date. We will inform everyone when the date, time and place have been established.
Please continue to keep us in your prayers during the coming days.
Update: Flowers are welcomed but donations can also be made to the Cy Rawls Benevolence Fund at any branch of the State Employees' Credit Union or a charity of your choice.
Frank and Susan Rawls
4317 Dutch Garden Court
Raleigh, NC 27613-2014
Home - 919-782-7793
My apologies for the lateness of this message. Tracy has asked me to deliver this news to Cy's friends.
Our boy Cy has taken what may be a final turn for the worse. The cancer is just working faster than Cy's body can fight it. A decision has been made to take Cy off of the respirator first thing tomorrow morning. He may be able to breath without it or he may not.
Cy's parents will be seeing visitors in the lobby of the fourth floor at Duke Hospital in Durham tomorrow (where Cy was the first time). I do not know how long they will be there, but I know they are uplifted by our company. Frank Rawls said that our displays of love for his son have kept them going for these last few months.
I will deliver another update when I have one.
Wednesday, October 1, 2008
I just got back from the hospital and here's an update. Unfortunately, he is back on a respirator because of the pneumonia. This isn't necessarily a bad thing at this point though, because it gives the doctors the opportunity to get a good look at his lungs so they can figure out what exactly is causing the pneumonia and can most effectively treat it. He was sleeping when I was there, and his parents said he is still pretty much out of it because of the swelling. However, the fluid seems to be draining well so they hope he'll become more lucid as the swelling decreases. This is a similar situation to where he was before and we all saw how well he recovered. Hopefully, it's just a bump in the road and he'll be out and about again in a few weeks.
They plan right now is to move him back over to the ICU at Duke as soon as a bed opens up. Hopefully today, but no one knows for sure exactly when the move will happen. And as far as visitors go, even though it is probably not a good idea for cy to have a lot of visitors right now, his parents have set up camp in the visiting room at Duke South (off of Wake Forest Rd) and will do the same once they get back to Durham, so people can feel free to come by and say hi...I know they would appreciate the company.
That's all for now and I'll let you know if I find out anything new.
Just got word from Mike that Tracy was visiting Cy this evening at the hospital. The situation is the same, but it has NOT gotten worse. Tracy recommends that we hold off on the visitations for now. Cy will be pretty out of it until they can get the swelling to go down further. Mike will talk to Cy's folks in the morning to let us know what's up and when folks can come by to see him.
Thanks for the good thoughts. I will certainly pass them on!
Tuesday, September 30, 2008
I just got this message from Cy's friend Mike Rowe. Cy's hit a bad spot. Here's Mike's message:
I just wanted to let you know that Cy has been admitted to the hospital at Duke South (on Wake Forest Rd) this morning. He was groggy and unresponsive this morning and his parents called an ambulance to take him to the emergency room. They did a CT scan and found some swelling in his brain. They did a procedure to relieve the swelling and may possibly put in a shunt tomorrow to further help with the swelling. They also did a chest x-ray and found that he has pneumonia, which they are going to treat aggressively with the goal of trying to keep him off a respirator.
Right now he is stable and partially responsive but isn't really talking. He can have visitors between the hours of 8am - 6pm, and then again between 8:30 - 11.
Cy's dad wanted everyone to know, and Mike said he'd let me know if there are any updates.
Monday, September 29, 2008
Thursday, September 18, 2008
So today my blood sugar count went off the heezy. My doctor introduced me to jamming insulin into my thigh and then later in the day ripping some blood out of me for a blood sugar count. It totally screws with my attempt at getting the $85 dollar steak meal for free at http://www.countrysquireinn.com/menu01.html
But some day I will return to gluttonous amounts of eating :)
Tuesday, September 16, 2008
And if you are interested in seeing what a bald yet somewhat bearded Hep looks like, be there around 4:00, for that is when it all goes down.
Thanks to the outstanding people at Syd's, and by all means, check out their website!
Thursday, September 11, 2008
We actually could also use a little more help over here. Most of the help we need is actually non-technical in nature. If you are self motivated, can talk to people and/or write email we can put you to work. The site has a link to sign up to volunteer if you'd like to help out.
Once again: CyTunes submissions page.
Tuesday, September 9, 2008
- Cy's health
Wow, y'all take me seriously. Hepler, get the shears; it's lights out for you, my man! Thanks, everyone, for taking the ChipIn widget over $5,000!
I've got some info to update you all on Cy's condition.
Cy's radiation cycle has ended, so he had a new MRI a few weeks ago to see how his treatment was progressing. His dad told me at the Superchunk show that the docs were shocked with his progress. First of all, our boy was not expected to walk in there at all, let alone stroll in in classic Cy style. His MRI showed that the tumor has shrunk significantly. Woohoo! They couldn't believe his progress. The docs upped his chemo meds because he's just tolerating them too well. I'm telling you, this thing didn't know who it was dealing with!
He had follow-up MRIs for thoracic and spinal stuff, and they both came back fine. I think that means that it hasn't spread anywhere.
Even better news: Cy has effectively been fired by Hospice. They have taken back their hospital bed and walker. Our man's just too healthy! Ding dang, y'all!
Another MRI at the end of the month. Kick ass!
Superchunk was apparently a HUGE hit. I think the report was that the door brought in $15,000! (If I'm mistaken, please let me know!) Robin had another several hundred dollars in t-shirt sales. The show was amazing. LOTS of songs were requested for that $100 fee, including Ross Grady's request for an Erectus Monotone jam. Mac brought up Kevin and Jennifer from EM to sing a song from an early 7" called "The Day the Sharks Flew." Completely amazing! Many thanks to all the bands that played that night. It was so incredible. I haven't been to such a great show in years. Made me feel like I was...25 again. Hmm. Cy was there, as were his folks. We were all impressed that they showed up for yet another sonic pummeling. I think they stuck it out for the whole show!
Peter Geddes, a friend of some of ours who lives in Fairfax, VA, held his annual summer backyard festival in Cy's name last weekend. Here's the message he sent out today:
Thanks to everybody who played and came out to the Nutstock festivities last weekend. Another amazing weekend! We raised $750.00 for Cy Rawls' medical expenses and got to hear some great bands, including The New Original Dandy Highwaymen, who won the Battle of the Bands by performing note-perfect renditions of songs from the Adam and the Ants back catalog while wearing vintage costumes and playing authentic,
period-appropriate instruments! Thanks to those who brought food, helped set up and clean up (and mop up!) and those who helped with the grilling. It would not have happened without you!
Also, Jonny Cohen has graciously donated 3 copies of the Jonny Cohen's Love Machine album "If 6 Were 8" to the cause. The first three people to contact me with a donation for Cy will receive a copy of this fine full-band effort,which includes
the moody "Silence of Rebecca", the heavy "War at Four" and concert faves like "Little Stickmen". Please contact me to pick up a copy of this classic Teenbeat release from 1997!
Thanks again everybody!
Peter3977 (at) Hotmail (dot) com
Indeed, thanks, everyone, for supporting Cy and his folks. I know how much they appreciate all of this. It ain't over yet, so keep the prayers and donations flowing. Great things happen when people come together for a single cause. We love ya, Cy.
The Ex-Monkeys are playing this Sunday, 9/14, at The Pour House Music Hall
in downtown Raleigh. Polynya is joining us and we'll be having DJ sets by
WKNC's Charlie Burnett, too.
The Pour House wants this to be a free show but we still want it to benefit
Cy. We plan to have a donation bucket and all Ex-Monkey merch sales will
go to Cy's benevolence fund.
WOOHOO!! Keep it coming, folks. Don't forget the Chip-In widget to the right. We need Hepler BALD!
Friday, September 5, 2008
Don't forget that the Pine State show tonight is a benefit for Cy. Dan Partridge recommended that I post what Grady had to say about the show. I think the fact that he wanted me to post this is pretty telling. You don't want to miss it. The last time I saw Pine State, there was the throwing of a garbage can from the stage, and I feel like I remember something being set on fire, too.
Here's some text from ross grady's site:
The Public Good are a pretty good pop/rock band from the DC area, so I'm not sure how the poor bastards got stuck on a bill with the likes of Pine State, surely one of the lowest-down lily-livered scurrilous gangs of scurvy fleabitten dogs ever to skulk the stages of Chapel Hill.
Of course, since nearly every member of Pine State now lives somewhere other than the Triangle, maybe they're carpooling or something.
This Pine State reunion, in addition to providing the opportunity for a lot of people to scratch their heads & look confused (seriously . . . they didn't really make any sense back in the day, and it's highly unlikely they'll make any more now), is also a benefit for our man Cy Rawls.
Dan Partridge recommends you also look here at Toenes's write-up:
See you tonight!
Thursday, September 4, 2008
Judging by the numbers on the chipin site, looks like I'm going to be bald come 9/29. :/
Saturday, August 30, 2008
We decided to do a special Trivia Night Benefit for Cy this Tuesday (September 2nd) at the Loft, the bar above Riviera [Loft 135 is above the Riviera Resto, 135 S.Wilmington St., Raleigh, NC] starting at 9 or 9:30. We'll be giving out free beers for the winners of each round and a grand prize for the winning team at the end of the night. We're gonna charge 5 bucks at the door and then all bar tips and trivia tips will go to Cy.
Awesome! I'm adding this to the calendar right now!
Thursday, August 28, 2008
Friday, August 29: Superchunk, Birds of Avalon and The Rosebuds, Cat's Cradle, $25, 9 PM
Saturday, August 30: Outback Steakhouse buffet lunch, 3500 Mt. Moriah Road, Durham, by New Hope Commons, from noon-1,
For $20, you get chicken AND steak, salad, mashed potatoes and a drink, with ALL PROCEEDS going to the cause. Eat in, or take out. Pay by cash or check (made out to Cy Rawls Benevolence Fund) at the door. There are only 50 spots for this event, so please RSVP through the Evite posted below.
Here's the link to RSVP:
Monday, August 25, 2008
Friday, August 22, 2008
In other news, Syd's Hair Shop is going to be having a fundraiser on Sunday, 28 September from noon until 4pm. They're calling it Haircuts for Cy. All proceeds and tips will go to the benevolence fund. There will be 7 stylists participating. Keep your eye out around town for flyers and reminders.
Thanks again, and keep coming out! We have more shows/screenings/drinking nights/dance parties/ubercreative events to come!
Oh, and by the way. If the chipin total there to the right of the blog hits $5000 by the time the Hair Stylist benefit happens, I pledge to get it all chopped off. I don't have a whole lot of hair, but I'll part with what I do have if you fork over some more cash. Don't know if that means anything to anyone, but I'm kinda hoping it peters out at 4999.99 until the 29th!
Wednesday, August 20, 2008
Saturday, August 23, at Nightlight in Chapel Hill: Clang Quartet, Crowmeat Bob, Inspector 22, Yohimbe, USA Baby, Roxann Spikula, and Secret Boyfriend
Saturday, September 6, in Fairfax, VA: Nutstock Festival--An annual backyard barbecue and rock show supporting Cy this year. Many Triangle bands will be playing. (See the note on the calendar for more info.)
Keep your eyes on the calendar to see what's going on for Cy!
this saturday, aug 23 at ocsc
all you have to do is drink!
proceeds are going to Cy Rawls
let me know. thanks! tricia
Monday, August 18, 2008
I second Hep's evaluation of the show. Thanks to all the bands for their participation and sheer rock quality. (I think Brian Quast is the ass-kicking Polvo drummer we're looking for here. Brian. Quast. Not a match. The board goes back.--Thanks to Cantwell for that info.)
Cy was there with his folks. Frank and Susan stuck it out until the bitter end! I was impressed. Thank goodness for the ear-plug industry. Cy said his radiation treatments end on Tuesday. He'll get an MRI shortly thereafter to see what's what, and then the doctors and Cy will decide what to do next. He said he'd try to let us know what happens. I asked how he was feeling, and Cy said he's not been feeling sick in a week or so, so the docs might up his chemo meds. He's such a tough-ass that I can hardly stand it.
Thanks again to everyone who helped out and showed up and rocked it and showed support. It was an amazing night!
CG&J did what they do best- freak me out with their frenetic pace and raucus rock. Rockus? The only thing more fascinating to me than how Cantwell can play his drums so low to the ground is how Anne Gomez can have one finger on the first fret of her bass and another finger, on the same hand mind you, on the 22nd. Nonetheless, blew me away.
What can I say about Polvo? I've said before that Celebrate the New Dark Age was what we could call my coming of age record. Taught me that you can push the limits of melody and rhythm and still have great songs. Perhaps I had a sheltered upbringing, Idunno. I don't recall hearing any of my favorite songs off that record, but they did play Feather of Forgiveness and some new stuff that I can't wait to hear on an album. Get on that, fellas. And let me add that perhaps the only thing that surpasses Brian Quast's (I originally said Walsby because I'm a little dumb) drum skillz is his humbleness. Had to practically beg the guy to sign the poster. I mean, I know that for me it would take a while for it to sink in that I'm in Polvo, but dude, you're in Polvo, and you're awesome.
Double Negative have the uncanny ability to condense an hour's worth of earth moving rock into a 16 minute set. And if the world's scientists can ever figure out a way to come up with portable desalinization, these guys could effectively counter drought conditions with the sweat they produce. They played an oustanding set. Maybe a little short for my taste. I can't believe I just said that.
Fin Fang Foom. Fin Fang Foom. Fin Fang Foom. Wow. I've been watching them play for some 10 years now at least. Those guys are just plain incredible. My knees got weak by the end. I don't even know how to begin to describe it, but there is a good reason why they're one of my favorite bands and three of my favorite people in the world. Oh, and they have a bass player that also plays keys. At the same time. As far as I'm concerned, they stole the show.
So yeah, many thanks to the bands, many thanks to Dave Bjorkback for his unrivaled MCing, thanks to Frank and the Cat's Cradle staff for making it so damn easy, thanks to Chris Rossi, Patrick Klem and Nick Petersen for setting up the recording equipment and recording the show, and most of all, thanks to all of you who helped us raise somewhere in the vicinity of $5,000 for Cy! I hope to see you Thursday at the Local 506 as Grappling Hook, Tooth, and Colossus will raise the bar another notch. Bring earplugs!
Also, keep an eye out for CyTunes! Once we get these sets mixed down and ready to go, once CyTunes gets the last few details ironed out for the store, we should start seeing some of the performances from last night. I for one can not wait.
Friday, August 15, 2008
WXYC is hosting a benefit party for 'XYC DJ Cy Rawls. All proceeds
will go to the Cy Rawls Benevolence Fund to help cover the cost of
Cy's medical bills.
For more info on Cy, his condition and other Cy Rawls events visit:
tickets are $5
Current and former WXYC djs spin from 9pm-2am
9-10 Glenn Boothe
10-11 Tim Ross
11-12 Jason Perlmutter
12-1 Ethan Clauset
1-2 Darren Hunicutt
We will also be selling limited edition "Cy Rawls Has a Posse" and "I
Love Cy" t-shirts! (All merch proceeds also go to the Cy Rawls
Hope to see you there!
Wednesday, August 13, 2008
I wanted to remind people to keep looking at the events calendar linked on the right to see what events are coming up to help Cy. While the posts have slowed, the bills are still building up. I better see y'all at Polvo! Cy, will you be out there?
Dave and I have been out of town for a while, so I haven't seen Cy in a couple of weeks. He told me via e-mail that he was able to get out to a wedding last weekend, and he's itching to continue to get out some more. Dave and I hope to hit La Casa de Rawls this weekend if he's not busy, so we'll check back this weekend. (I imagine, Cy, that it's a little weird to post for yourself saying how you're feeling, so I'll be happy to report back if'n you'd like.)
Also, in case people aren't reading the comments, Kathy posted info about a yummy fundraiser for Cy. You need to RSVP for the event! Here's what she said:
Let's Go Outback for Cy!
(I also came up with this one: "So Begins Our Wallaby")
ANYWAY, after "getting jiggy" with Birds of Avalon, Rosebuds and Superchunk Friday night, come out to a tasty and nutrient-rich buffet lunch at Outback Steakhouse at 3500 Mt. Moriah Road, Durham, by New Hope Commons, from noon-1, Saturday, Aug. 30. For $20, you get chicken AND steak, salad, mashed potatoes and a drink, with ALL PROCEEDS going to the cause. Eat in, or take out. Pay by cash or check (made out to Cy Rawls Benevolence Fund) at the door. There are only 50 spots for this event, so please RSVP through the Evite posted below.
Here's the link to RSVP:
You gotta eat, and you pretty much also got to keep on helping out Cy and family. Come on out! All props go to Bryan Harris, Outback manager, and his wife Jessica for arranging this lunch fund-raiser.
Saturday, August 9, 2008
Click "Chip in" to donate, and click "copy" to get the widget for your own blog, MySpace, Facebook page or what have you. People can also give PayPal donations directly to email@example.com or visit cyrawls.chipin.com to make your own fundraising widget.
I am now the self-appointed goddess of online fundraising for Cy and I'd love to hear any other suggestions y'all have about how to spread the word and raise as much money as we can.
Just letting you know, Cy's dad has kindly sent out the account number and routing number for the Cy Rawls Benevolence Fund. Ruby is working on setting up a PayPal account this weekend so that people far away have an electronic way to donate. So, you should contact her directly you have any ideas about the PayPal electronic account.
Cy's dad also says that:
You can still make a donation to this fund at any State Employees'
Credit Union office within in the State of North Carolina. If you want to go into a State Employees Credit Union and make a donation the Account number is: 08607568795.
Please make checks out to the CY Rawls Benevolence Fund. If you by a Cy tshirt with a check you should also make the check out with the fund name. Cash is probably easiest though.
You may also send checks to the following address:
Cy Rawls Benevolence Fund
State Employees' Credit Union
2401 Blue Ridge Road
Raleigh, North Carolina 27607
Attention: Mrs. Candace Bulebush
Also, Cy's dad sees no issue with using the name Cy Rawls Benevolence Fund on any print materials (flyers).
If you have any questions I will try to answer them asap.
Ruby will post with information about the Paypal account when it's ready.
Tuesday, August 5, 2008
First of all thanks to Kerry F. Cantwell for putting this blog together! I can't thank enough the amount of visitors I had to my hospital room and house! Ex-girlfriends who I thought despised me visited and even called!? My current girlfriend Tracy has been amazing! I found out I can't drive for 6 months?! It's like I get to be 14 years old again.
I basically have a plethora of Polvo songs in my head all day which is awesome and that hasn't really changed since the early '90's. Thanks also to Tim Ross for the Carolina basketball autographs, but keep in mind I LOVE CAROLINA FOOTBALL! I think this coming season can be a legit one....Well, if you made it this far into the blog you rule. Stay clean and positive. True f'n love as always!
Friday, August 1, 2008
For the Cy Events Blog
The Magic Babies w/ Violet Vector and the Lovely Lovelies
Aug. 23rd, 10 pm
FYI, the Pine State show at 506 on 9/5 will now be a benefit for Cy. It will also include The Public Good, which features members of an even older Chapel Hill act, The Popes.
For the record, he no longer needs weights or rides to his treatments. Those have all been taken care of. His dad said they had about a dozen callers offering to help with transportation, so thanks to all who offered to help. The Rawlses are very grateful for the love and concern they are receiving from everyone.
Cy is, however, hurting for some strawberry Goodberry's ice cream. I told him I'd put the word out. If you plan to bring some by, please post here so he doesn't end up with 50 gallons of strawberry ice cream. For the record, Mr. Rawls did ask us last week not to bring dairy. I'm just saying. I don't want to be responsible for...well, anything...ever. :)
Apparently, Foster's Market brought by dinner for his family the other day. Cy joked that he was surprised they wanted anything to do with him after he "freaked out in their restaurant." Classic. I argued that he should tell them that all of this is a really bad case of food poisoning.
Cy will be receiving his radiation treatments until the middle of August. He seems to be tolerating the chemo and the radiation surprisingly well. He has had seven treatments and he said they get shorter and shorter every time. He said they just run this thing over his head for about fifteen minutes. They've been playing Sade during his last three treatments. Is that good? I have no idea. The chemo makes him a little barfy, but not nearly to the degree he had expected!
Be ready if you go by: there are LOTS of adorable Cy pictures in the house that you NEED to get a load of.
Thursday, July 31, 2008
Wednesday, July 30, 2008
Another idea I had, seeing some of the bands that are considering reunion shows for Cy, is putting together a Reunion-fest. The set-up would be similar to the cover-up, each show featuring more bands doing shorter sets, as opposed to one or two bands feeling like they need to carry the entire night. If you'd like to get your old band together OR you have an non-existent local band you'd like to see reform (Teasing the Korean and Finger come to my mind!), please let me know.
Or maybe, we should just combine the ideas and have current local bands cover former local bands!
Write me directly at glennATlocal506DOTcom.
Cy Has a Posse
All proceeds go to the Cy Rawls Benevolence Fund
you can email poster ideas to firstname.lastname@example.org or print them yourself and deliver them to Glenn at the Local 506.
Tannis Root/Kung Fu Nation have Cy t-shirts ready to go. We will be selling them at benefit events starting Friday, 8/1 at Slim's. Also, if anyone wants to buy one over the internet, they can email me at email@example.com and we can take payment through Paypal and ship to them from our office. The image is below and the shirt will be available in various colors. We hope to have some stickers and buttons available soon as well but those won't be done in time for Friday's show.
Friday, August 29th
at the Cat's Cradle:
BIRDS OF AVALON
Here's a blurb about it: http://www.indyweek.com/gyrobase/Content?oid=oid%3A261732
C'mon out, folks; let's rock.
CY RAWLS BENEVOLENCE FUND
The Cy Rawls Benevolence Fund has been established through the State Employees ' Credit Union.
You can make a donation to this fund at any State Employees' Credit Union office within in the State of North Carolina.
Please make checks out to the Cy Rawls Benevolence Fund.
You may also send checks to the following address:
State Employees' Credit Union
2401 Blue Ridge Road
Raleigh, North Carolina 27607
Attention: Mrs. Candace Bulebush
Online donations will NOT be accepted.
Frank and Susan Rawls
4317 Dutch Garden Court
Raleigh, NC 27613-2014
Home - 919-782-7793
Cy's dad wanted me to post this request to the blog to see if anyone could help with transportation to Cy's radiation therapy. On Friday Aug. 1 and Monday Aug. 4, Mr. Rawls has doctors appointments and won't be able to help Mrs. Rawls get Cy to his appointment. They just need someone to meet at their house at 9:30 am to go with them to the appointment and provide support to Cy in getting from the car into the office and back to the car, in case he needs it. They said they should be back home by 11:00.
Please contact Mr. Rawls at 782-7793 if you can help.
Monday, July 28, 2008
In general, Cy was more Cy-like than when he was at Duke. He's getting his appetite back and is walking around with a walker. He tells us that he is having chemo treatments until the middle of August. His eyesight isn't so hot, so he can't see the TV so well. We realized that a laptop with an Internet connection would seriously help him pass the time - since he can't get upstairs to his computer. Anybody have a spare laptop and wireless router he could borrow for a month or so?
Sunday, July 27, 2008
As most of you know, CY will resume radiation therapy at Duke RaleighHospital tomorrow, Monday, July 28 @ 11:30 PM.We are asking everyone to please follow this request:12:30 PM - 4:00 PM - Quiet Time for CY This time span will apply for Monday - Friday only until all treatmentsare finished. This will allow CY time to be with his home care nurse,eat lunch and rest time.Thank You for your cooperation.
Frank and Susan Rawls
4317 Dutch Garden CourtRaleigh,
Home - 919-782-7793
Now that CY is home he still needs his rest. Per his home care nurse she is asking that visits be staggered, so that everyone is not here at the same time. Because of his radiation therapy treatment he needs to be in a germ free environment; therefore, she is also asking if you have the sniffles, cold or under the weather in the past several days please plan your visit for another time. CY enjoys seeing everyone as do we and we are certain that with these few restrictions we can work this out. It would be most helpful if you would call before you visit... that way we can plan accordingly.Thanks again for your continued care, concern and support for CY.
Frank and Susan Rawls
4317 Dutch Garden Court
Raleigh, NC 27613-2014
Home - 919-782-7793
Here is an update I received from Cy's dad:
Cy came home yesterday afternoon around 4:30 PM. He had a good rest of
the afternoon and night. The home service nurse which will work with us
met us here around 4:40 PM. She is wonderful.
He will continue his radiation therapy as an outpatient going to Duke
Raleigh Hospital (old Raleigh Community Hospital).
It is hard to put into words how we all feel about you because all of
you are very special.
Please continue to keep us in your prayers and thoughts.
God Bless you!
Frank and Susan Rawls
The Merch has made some posse t-shirts for Cy. They donated the shirts and their services. The shirts are $20 and can be purchased from Tim Ross (tim at tubafrenzy dot org).
Saturday, July 26, 2008
Also, his nurse said it is probably a good idea to have a ramp built over the stairs to make it easier for Cy to go outside. I'm going to work on getting a plan for a ramp on Monday but if anyone has building expertise and wants to help, please let me know.
Friday, July 25, 2008
Rawls' house on Google maps
Rossi and I saw Cy last night & had a good long visit, along with several other folks. Love that fancy corner room, with room for lots of visitors at once! I think there were 7-8 people in there at once. It felt pretty festive in there considering we were in a hospital. Though if things go according to plan, Cy might be going home today (Friday). He's been handling chemo & radiation pretty well this week. Seems like some nausea & those damned hiccups are the worst side effect so far.
We helped Cy's parents load their car up with a giant tub of DVDs, a trash bag full of stuffed animals, and some other bags of magazines & gifts. That wasn't all of it, either. They left in the evening to go prepare the house for Cy's arrival. We asked if they needed help at the house, but they say they have it all worked out. Someone from one of the local Hospice organizations will come and help set up a hospital bed & they have a place ready downstairs at their house where they have had a bed before. They decided the hospital bed would be easier because it's so important for Cy to be sitting upright while he eats. I think they will be going to the hospital in Raleigh for treatments once they're set up in Raleigh. Cy's dad said they'd just turn on the porch light and we can all come and go. Hee hee. I'm hoping that once they get things settled at the house that we can work with the family to visit often. I told them to let us know about the Rawls house visiting hours.
Can someone else post or comment on Friday to let us know when/if Cy finally leaves Dook?? Thanks! -Mary B.
Thursday, July 24, 2008
I asked if he liked this ward better than the last. He said he did mostly because there wasn't all the yelling. In the neuro ward, the doctors and nurses yell very loudly to the patients to keep them focussed and on task during tests like moving limbs or blinking.
He's had a couple sessions of radiation and he's been taking the oral chemo meds. The treatments are making him a little nauseous. I heard from his folks that the hospital served him mystery meat for dinner tonight. They thought it was meatloaf. When I asked Cy, he said he thought it was pork. When I laughed, he said, "I threw it up anyway." So nausea is clearly the order of the day. As Cy's folks were leaving, he said that today had been a pretty good day.
That reminds me! Frank e-mailed me a few hours ago with the following request:
Please ask everyone for the moment to stop bringing Mexican food and milk shakes (dairy products) for Cy. We think this might be causing some of the nausea.
Any help in this matter would be appreciative.
Once again, thank everyone for their support to all our family.
God Bless you!
Frank and Susan Rawls
Back to my story.
As we were on our way out, Rob K. showed up with his cooler of Locopops. Cy was as happy as he could be. He dove right in.
Dave and I are in Wilmington until Friday night, so anyone with updates should post them!
Wednesday, July 23, 2008
Dr. Steven Curley, in this video, is currently treating my Aunt for liver cancer. According to my aunt "he is even cuter in person!" Ok.
Tuesday, July 22, 2008
If you play music, donate a song! If you know people who play music, get them to donate a song.
I have set up a primitive placeholder site at http://www.cytunes.org/. News and instructions will now appear on that page instead of on this blog. Please go there for any further updates.
We are forging full steam ahead. Thank you to everyone who has responded so far.
Courtesy of the Slim's MySpace page:
August, 1, 2008 : Benefit for Cy Rawls w/ Devour and Grass Widow.
227 S. Wilmington St., Raleigh, North Carolina 27601
Monday, July 21, 2008
I saw Cy this afternoon and was able to talk to his doctors a little bit about next steps in his treatment. He's looking great and he definitely has his appetite back. He should be starting his chemotherapy today (which is administered orally) and should start his radiation treatment tomorrow. As with any treatment of this kind there will be some side effects that may make him tired and not feel well sometimes but the doctor conveyed that they really won't be as bad with this treatment as many people think of when they think of Chemo. There will be good times and not so good times but Cy is tough and I know he'll "power through it".
He should also be checking out of the hospital in the next couple of days and he's got to be excited about that. I'm sure his doctors and nurses are giving him great care but I know he'll be glad to get the hell away from Duke and back into frendlier confines.
Once he is discharged he'll be going back to his parents house to stay. But for tonight and probably most of the day tomorrow, visitors are welcome!
If anyone has any more specific questions, feel free to give me a call at 323-4876.
I have an idea for fundraising for Cy. Both the scope and the time line are -- of necessity -- very aggressive. We can only do this if other people agree it's a good idea and volunteer to help. Please contact Janette Park if you would like to volunteer, offer advice or give feedback. Her e-mail address is jparkesq at the same domain as all of the other gmail users. I apologize for this obfuscation, but she only wants human beings to be able to read that. No spambots, please.
CyTunes.org will be a web store where people can purchase songs that have been donated by bands and artists who like Cy, or whom Cy likes or who are just awesome enough to participate. All songs must be original works and must be exclusive to CyTunes. As we have seen, Cy has very many friends, many of whom are talented musicians. Some of these have been or currently are in bands that have achieved national and even international notoriety. By selling exclusive works by bands that are not just of local interest -- but who are potentially also known regionally, nationally, or internationally -- we can draw a wider audience and bring Cy's story to the entire world, reaping greater rewards on behalf of our dear Cy.
In addition to the fundraising angle, the process of writing and recording these new works by people who know and love Cy, regardless of how well-known they are currently, gives the community an opportunity for unity and healing. We all know that Cy is a huge music fan, and most of us know Cy because of this shared love. What better way to show our love for Cy than through music?
I can get the ball rolling on this immediately by starting in on the programming for the website and online store. I will also offer up use of my studio and my services as a recording engineer for free to any band that wants to record a song for CyTunes. I have already bought the domain name 'cytunes.org' in anticipation of this effort.
Purpose of Fundraising
On Monday, Cy will embark on an extensive course of chemotherapy. If the chemotherapy goes well, Cy will be released from the hospital and continue treatment without having to be confined to a hospital bed. When this happens, Cy will not be in any position to work but will face a galaxy of expenses: the basics like rent, food, and utilities on top of doctor's visits and medications, which will be frequent and expensive. The aim of this fundraising is to allow Cy and his family to enjoy their time out of the hospital and take advantage of Cy's treatment options without having to worry about day-to-day expenses. Of course Cy has also incurred an enormous pile of medical bills from his hospitalization at Duke. These bills, however, will likely be dealt with later and are not the highest priority at the moment.
Immediate Action Required
I cannot overemphasize the extent to which time is of the essence. If aid is to reach Cy when he needs it most, we must act immediately. Just as the tumor in Cy's head is very aggressive, and his chemotherapy treatment will be aggressive, our efforts to get this site up and running and populated with great music must be equally aggressive. There is no time for contemplation. If you want to be a part of this, don't think about it; just do it. Obviously, one thing we need a whole hell of a lot of is music. The more songs we have the more songs we can sell. Have you ever wondered whether you could write a song on a deadline? Now's your chance to find out! My hope is to have an initial launch of the site within *two weeks*. That is ambitious, but -- with a show of enthusiasm from others -- I will be working on this as my full-time job for the immediate future. I happen to be uniquely positioned to do this right now.
Guidelines for Submissions
All songs must be original. We cannot use cover songs because they bring legal complications. Also, in order to attract people to our site we need to have songs that are exclusive to our site. Existing unreleased material is acceptable. We do not need to own or control your song in perpetuity. After a suitable period -- a year or so -- you'll be free to release your song elsewhere. We don't want to own your song -- just to be the exclusive distributor for a year. After that it's yours again.
I cannot do everything. This will only be possible with a dedicated team of talented people. If you are currently underemployed, you might be a very good candidate for some this. These are the positions I see an immediate need to fill:
1) Legal Adviser -- preferably a bona fide lawyer. We will need someone who can negotiate the dark realm of entertainment law and make sure that we're doing what we need to do in terms of licensing music from bands to sell--dotting i's and crossing t's kind of stuff.
2) Graphic Designer -- I'm a computer programmer and recording engineer. I only do graphic design under duress and I am very slow. We need someone super talented who can create a beautiful site concept and generate HTML templates for every page on the site. You must also be able to work with an aggressive deadline to get the site launched.
3) Band Wrangler -- We need someone who can find bands, contact them, and persuade them to record songs for us. This person will also need to follow up with bands who have agreed to record and make sure they follow through on time. This person must be willing to nag as needed.
4) Publicist -- This could possibly be the same person as the band wrangler, who could start doing mostly band wrangling and gradually transition into publicity. This person will need to spread the word about all of the kick-ass music on CyTunes, far and wide. This will include calling and e-mailing newspapers, magazines, online publications, blogs--anything that can get the word out. Someone with some marketing or PR experience, especially in the music industry, would be ideal.
5) Project Manager -- I can probably do this, but we might all be better off if I can concentrate on the technical challenges of getting the site going. The project manager would be in charge of communicating with everyone else who's working on this, keeping track of what's going on, helping to set priorities, identifying roadblocks and helping to overcome them. This person should be driven and focused but have good social skills. He or she must be highly organized and have a good understanding of what everyone is trying to do.
Finally, everyone involved must keep the nature of the project in the forefront of their minds. This project will go forward if we can get enough people power to make it happen. Please contact me immediately if you can help. This isn't about personal glory. It's about Cy. So ... let's rock!
ADDENDUM 3:43 pm:
We could also use some general purpose volunteers. People who don't mind being asked to perform some random task every now and then. If you don't think you can do one of the jobs above or just can't commit that much time, but would like to help out, let me know and I can put you on a list of general volunteers.
ADDENDUM 5:52 pm:
I have no idea if that two week figure is at all realistic. Either way, it seems to have caused some confusion with bands, for which I apologize. My goal is to have the web store up and running as soon as possible, two weeks if we can swing it, with some music already ready to go. I figure we need at least 30 songs to launch. It is not my expectation that all bands will have their songs completed and submitted in two weeks. I figure once we get going we'll be adding songs as we go. Obviously, though, the sooner the better. We do need great content, fast. Thanks to everyone who has volunteered so far!
-- Chris Rossi
Contact Janette Park. Her e-mail address is jparkesq at the same domain as all of the other gmail users.
Sunday, July 20, 2008
Rachel and I went to see Cy around noon today. When we came in he was sitting in a chair beside the bed. He looked good and appeared to be breathing pretty well. We talked for a while, and he seemed to be in pretty good spirits. While obviously tired and a little groggy, he had no trouble confirming how many times Ric Flair has been world champion.
Dave and I saw Cy this evening around 6:00. Damn, it was good to hear that kid's voice! He still has the feeding tube going through his nose to his tummy, but that's no big deal. I heard that someone brought him a Gatorade, which really made him happy. He was being "fed" while we were there. It was pretty rad: the nurse fills a giant syringe with some nasty liquid meal and then just forces it into the tube that goes through his nose. We asked if they could add some Mexican seasonings or something so the kid could get a real meal.
Nicole Triche and Traci were in there with us. We had a grand old time! Cy was talking and laughing and goofing off with us. We accidentally took too long and forgot that there were about 20 people in the waiting room trying to get in. (Whoops. Sorry, guys. )
Thanks to all the people who came to see Cy Saturday. It was such a great joy for him. People just kept coming along to see him. It was awesome. He has had NO time to read his magazines or watch his DVDs because he's just had too many visitors, but he wants us all to keep coming. He's begun to decorate his room with autographed photos of Tarheels as well as pictures, art, and the rad bowling poster. (Tim Ross, you gonna get the football team to come by or what?)
Cy's parents have been fabulous. They've been sitting out in the waiting room accepting guests and food and being so gracious. They really love seeing all of Cy's friends coming to see him and showing how much we love him. His dad said that we help keep him strong.
What lies ahead in the immediate future? Well, if Cy can breathe strongly on his own through tomorrow, he will begin chemotherapy on Monday to shrink the tumor. Please keep coming by to see Cy on Sunday to keep him strong. We love you so much, Cy.
Saturday, July 19, 2008
Friday, July 18, 2008
I know so many of you have been inquiring about ways to set up paypal accounts or other accounts for the money that will be raised for Cy! I have investigated how to open an account and here is the scoop.
No individual should open a checking or savings account in their name for funds to go into. I had thought about doing that because it would make things easy for a paypal account to be set up but it turns out it it's not a good idea. Myself or any individual who thought about doing that could open it easily but, if audited soon or later in life could face many problems with the IRS and it would be a paperwork nightmare. A helpful fellow at Wachovia told me this information today. He also said the money should not go directly to Cy's parents because they could also face the possibility of major auditing issues.
So, my friend at Wachovia recommended this course of action (which has been done many times through their bank since they are in such close proximity to Duke). A non-profit can take the lead on opening a trust checking account, which will be for Cy's medical bills. The non-profit has to provide their "articles of incorporation" and their tax id number. Cy's social security number and a copy of his driver's license has to be provided also. The selected non-profit, hopefully Cy's parents' church (yep it can be a church), will then name a custodian from within the church (usually the church treasurer) to look over the account and funds which will help to alleviate the burden of the incredible medical bills.
I talked to Cy's parents' pastor today about this when I went to the hospital. He is speaking with the church treasurer on Monday. Keep your fingers crossed that this works out. The pastor is going to call me on Monday to let me know if they are going to proceed. This would be the best way for the fund raising account to be set up. If it does get set up I can get the account information so we can set up a paypal account to link directly to the main trust checking account.
I'll keep you posted on what I hear.
Tomorrow is a big day. At 10am, the doctors are going to remove Cy's breathing tube. If he can breathe on his own, they will move forward with a very aggressive course of chemotherapy immediately. Cy's parents want as many people there to visit Cy tomorrow as possible. We lift his spirits and keep him focussed. Don't feel the need to bring anything, but your presence is requested. If you have not felt comfortable coming out yet, now is the time for you to find your Cy zone. He needs us now more than ever.
I made a Google spreadsheet that anyone can edit. It is just a shell. Feel free to add columns or rows or ideas or names. Whatever! If you want to help organize, just add your name and contact info. Some folks are most comfortable typing out addresses like this: geartilter at gmail dot com. This keeps spammers from collecting your addresses automatically.
Here are the ideas and offers we have so far. At Jessica's suggestion, I will try to put together a Google Document (???) with all of these ideas and people who want to create committees for organizing (Ben D's suggestion) can sign on and get connected.
- Ash B is interested in participating in a fund raiser rock show.
- Tannis Root is interested in offering their services to make shirts (A "Cy Rawls has a posse" shirt perhaps?--Nicole Triche's idea)
- Ben Davis is organizing a Run for Rawls
- Some folks want to do an eBay sale of stuff for Cy
- An art auction has been discussed
- A craft sale was discussed
- A popular member of a popular band on a popular label in the area (hawhawhaw---sssssssseeeeeecrets) has offered to try to put a show together.
- Frank and Glenn are looking at dates for shows at the Cradle and 506 respectively.
- Cy Rawls tip jars at the businesses he frequents
Fundraising info I have gleaned from others:
- No accounts should be put in Cy's or his parents' names as that would be considered assets by bill-collectors and The Man.
- We need to make sure Cy's monthly bills are paid to keep his credit in check. I'll mention that to his folks today.
You guys are absolutely incredible. Please keep visiting Cy. He needs to positive vibes in there.
More as we know it.
Also, Kristie Porter is looking into collecting donations for Cy's folks. She wrote:
You can let folks know that soon there will be an electronic way to make general donations for his medical bills. It's all just yet to be figured out.
I'll let you know how that turns out.
Thursday, July 17, 2008
What I wanted to share was a site on the Duke site where you can send Cy cards for free. They'll print them out and deliver them within 2 days.
I am just back from a long day at the hospital with little to tell. The situation is not good and foggy at best. Cy's parents have not yet really explained what happened today and what will happen next. I sense they're still trying to understand it themselves. Here's what I know.
Cy went in to surgery at 3:15, and the surgery was aborted at 3:45. His parents were summoned to the OR at that point. They were down there for almost an hour. While they were down there, Cy was brought back to his room. At that point, we received the update you read earlier today from the Rawlses' pastor who was with them downstairs. That update now seems to be a little confusing. When Cy's folks came back up from the OR, they went back to talk with Cy and the docs. Once they returned, they remained pretty quiet for the rest of the evening, intermittently crying and welcoming guests.
From others, I have learned that the tumor is not a compact unit as they had earlier believed. They have discovered that it has fingers that are invading the brain. This complicates the situation considerably. Surgery would not be as much of a help as first expected. It might actually make the situation worse. A plan for treatment has not been determined, but it could consist of aggressive chemo and radiation.
We saw Cy for a bit. He was lucid, a little sleepy, but happy to see us. He laughed at some jokes and funny stories. He is no longer speaking as he has tubes down his throat. No hiccups, though, so that's good news. He did give us a pretty accurate drum roll to a Rush song that was on the iPod. (Many thanks to Mike Rohe for providing the iPod and the DVD player.) Bjorkback was able to get him some paper and a pen so that he could communicate better. Bjorkback apparently commented on Cy's rad hairdo, to which Cy replied by writing "skullet" on the page. Awesome!
He says he is in no pain whatsoever, but he knows what is going on. The meds make him nauseous, so he gets more meds for that which make him a little groggy. He is clearly a little scared and teared up at one point. He needs our prayers and well wishes now more than ever.
Cy's parents have indicated that they need us to move FULL-SPEED AHEAD on benefits and fund-raisers. Rockers: get in high-gear! We have confirmed that he has no health insurance. He was actually in the process of getting it reinstated last week. Suck. Can someone also set up some sort of fund that folks can donate to online?
There's something else I'm supposed to mention. What is it? Oh, yeah! For those who bring food, Rossi asked about their food preferences. Cy's dad said that he does not care for Mexican food, Greek food, Asian food, or eggplant. ?????? We had a good laugh about that. He prefers Southern food and good old meat-and-potatoes kinds of meals. They have not been sleeping well and are clearly mentally and physically exhausted. Please keep them in your prayers, too. They need our strength right now. They reiterated again how much they appreciate seeing all of us. It lifts their spirits to know that we are all there for them and for Cy.
Sorry this is so scatterbrained. I hope to have more information soon. As Cy's dad said, "We really need to pull together right now, y'all."
Cy's surgery was canceled for the time being, but he is awake and accepting visitors. He seems a little nervous and is welcoming well-wishers.
(I haven't seen him today; I get this news from Kerry on the telephone. Heading out there now...)
The surgery was cancelled shortly after it began. When the doctors got in there, they apparently found several lesions on Cy's neck that would jeopardize the surgery somehow. The doctors have decided to instead begin a very aggressive course of chemo and radiation. His parents are in with the doctors now. More as the situation develops.
Mary Brunnemer left this update in the comments, but I thought it should go here. I have not called the hospital yet to see if surgery went ahead, so if anyone knows, please let me know.
Wednesday's late night update:
Just left the late shift visiting hours. I didn't get to see Cy, but hung around for a bit. Apparently, there was a little setback this evening. The MRI results from late today showed some issues that could possibly cause them to rethink surgery tomorrow. They put the breathing tube back in, concerned that he'd have issues in his sleep, but from what I understand, that seems to be a precaution to avoid any kind of emergency situation. Right before they did that, he was groggy, but passing tests such as identifying numbers & sticking his tongue out on command. He seems to be very groggy from all the wear & tear, not to mention the drugs they are giving him.
The docs are planing to wake Cy up every hour & check his ability to do things like identify numbers, etc. We got one update right around 11:30ish when his parents went back to check on progress. Things seemed OK, but surgery may or may not be back on. The docs will decide in the morning. IF they do the surgery, it should still be around 12:15 tomorrow & last about 3-4 hours. If not, they may take other action, but seems certain that some kind of treatment will happen ASAP.
If anyone that was there tonight can fill in any holes in my info, please do. And for anyone going over to visit in the morning, please post the latest so we'll know whether or not the surgery is taking place!
Till then, Cy, you are in my thoughts--me and countless other friends, family, loved ones, & dare I say, fans. If we start the Official Cy Rawls Fan Club now, I think we can turn any future musical benefit action into a full-fledged festival, right? :-)
XO, Mary B.
I was thinking about it last night while I was in bed (since Cy's all I can think about--every dream I remember last night was about Cy), and I had a strange realization.
Cy's situation is an amazing opportunity that I wouldn't ever wish on anyone. How many people get the chance to find out just how much their friends love them? Cy has spent his entire adult life showing us how much he loves us. He shows up at our parties so quietly, makes sure we know he's there, and then slips out without fanfare. He crosses the country for our rock shows. (He often does all of these things in one night. ) He always takes the time to say hello and tell us how well we did at whatever we're doing. Who does that?! Cy does that.
Now, we're getting the chance to show Cy how much we love him. What a strange, unfortunate gift. I don't think Teddy Kennedy had as many visitors as Cy has had.
Don't wait for brain tumors: tell your friends you love them.
Read these reports for more info:
At 6:21pm, Aaron Smithers wrote:
Montgomery and I went over this morning and showed up just about the same time as Carrie Shull and we all had a nice visit. He was awake and responsive, a little uncomfortable because the feeding tube had been removed and I think his throat hurt. Still, Cy was in good spirits and we joked around a little bit and it was nice to see him laugh.
He has WXYC playing regularly it seems and I couldn't help but wonder what some of the doctors and nurses think about some of the music.
Got to visit with his dad and another gentleman whose name I cannot remember and we got to share some stories with them as well.
At 7:25 pm, Skip Elsheimer wrote:
Michael Pilmer and I visited Cy at around 5:30pm or so. His parents have gotten good at identifying who is visiting Cy. His dad noticed Michael Pilmer's Van Halen shirt right off.
Cy was in good spirits when we saw him. Still tired. No hiccups though. He's weak and bored but still Cy - cracking jokes, etc. He has an ipod and a portable DVD player setup. Cy has requested to see The Wire. He says he wants to see it again from the beginning. So if anybody has that on DVD, he'd really appreciate watching it.
I'm told he's scheduled for surgery tomorrow afternoon. After that he's going to be recooping for a while. I asked Cy's parents when he might be up for seeing visitors. They thought it might be late Friday or Saturday though he'll probably be in rough shape - tired, etc. We may want to confer with family to see when its good to visit Cy. He appreciates the visitors but it is exhausting for him.
The parents have been very touched by all the friends visiting. Cy's cousin told the parents about the blog and all the comments. I told the parents that Cy is beloved in the Triangle music scene.
Chances are Cy and his parents are going to need help paying for all of this. So we might want to start passing a hat or something...
Carrie Shull wrote:
If any of Cy's out of town peeps need a place to stay or bathe, I live pretty close to Duke Hospital. Very close to where Anderson St runs into Chapel Hill Rd. I could give up my bed, I have a couch, or I have plenty of room for an air mattress.
1919 Ward St
Durham NC 27707
Wednesday, July 16, 2008
I went today at lunch. Cy was asleep, but looked to be resting comfortably. I talked with his parents. They were telling me about how people have continued to come out and visit. They were waiting to give Rossi his dishes back from the dinner that he brought them (so sweet!). I asked if they had any likes/dislikes for food and Mrs. Rawls said they were pretty easy going on that end of things. They looked like they were anxious and said as much because they are just waiting to hear when the surgery will be.
After I left, Jennifer Fuller and Heather were over there. This is news from Jennifer:
Cy was awake and the nurse was doing several tests, follow the finger, push with your feet, squeeze my hand...and Cy was passing all of these tests. She said he had his sense of humor "They gave me a bad haircut" and seemed to be feeling ok. The hiccups were still going on.
Here's the news that Jennifer heard. I'm not sure if this has been confirmed, but thought I should pass it along. The nurse said that the doctor would be returning this afternoon and may actually plan the surgery for tomorrow at noon. If that is the case, anyone who wants to visit him tomorrow should come before 10:30 am.
Feel free to post this or parts of it on the blog. I will be keeping up with it as much as I can today.
Tuesday, July 15, 2008
Cy's mom also suspects that Cy has no health insurance. She was not completely sure, though. I told her that people had been asking me about that, and she was very open with saying that she thinks Cy let his health insurance lapse. They are going to be applying for Medicaid for Cy this week. I do not want to be responsible for coordinating anything on that front, but when I said that I thought there were some people who wanted to help out and the likelihood of some benefit events, they were very pleased by the idea. So if you are interested in taking on that sort of organizing responsibility, let me know and I'll gladly make you a poster to this blog.
James Hepler will be posting soon about an idea for buying Cy a portable DVD player and some DVDs, so keep your eyes peeled for that.
When I went out after work today, I dropped off a couple of metal magazines. Cy has plenty of magazines to read at this point! He had a big stack of them as well as 4 stuffed animals. From all accounts, the reading material is very welcome as Cy is getting a little bored of sitting in one place. He looked good, but he is a bit groggier than last night. I understand he's had a LOT of visitors today and is on two anti-seizure meds to keep things in check. I have no idea what else he is taking.
Cy got to have his first meal today since Saturday. The feeding tube was removed earlier today, so when I got there, he was trying to push down some fish sticks and mashed potatoes. He was almost too tired to eat, and it didn't look all that appetizing anyhow. I heard there had been a cookie earlier that had made him pretty happy.
I also dropped off a printout of the comments that folks have left for him so far on this site. I reformatted them in Word and reduced the margins. It was still 13 pages long! I asked Cy if he had heard about the site and he nodded mid-fish stick that he had, but he was clearly a little skeptical about it... until he saw the packet of comments. He was really pleased and surprised about that! He looked exhausted, but he was still requesting that people keep on coming in. In the hour that I was there, there must have been at least 20 people there to see Cy. His parents were thrilled. There were so many of us that the receptionist just kept the two guest badges on the counter.
I asked about the outlook for Cy. His folks said they were waiting on the oncology report to know what the tumor is for sure. They had been mistaken about the location of the tumor. It is further back toward the middle of the head on the right. When his parents showed a bit of nervousness about the surgery, someone in the department said, "Oh, it will be fine; we did 15 of these surgeries last week." That really made Cy's mom feel more at ease. The main doctor is out of town today and tomorrow; he will be back on Thursday to set a firm plan for Cy's treatment. So his future is in a bit of a holding pattern right now. I'll certainly provide an update when I know one.
I don't think I will be able to go by tomorrow, so if anyone else does, please let us all know if there is any new news.
This message came to me from Chris Rossi an hour ago:
Nothing terribly new or informative, except his parents indicated that they were waiting on a pathology report that they hoped to get tomorrow. Based on the pathology report they will come up with a plan of attack. So they don't really know yet if they're going to be operating or what the plan will be.
Richard and I saw him around 1pm and he seemed to be really tired and ready for a nap, so we were only there for a minute. It was good to seem him talking and moving--he shook our hands. He was clearly not feeling well, though. And he still had the hiccups. I think Cy definitely appreciates all of the attention, but all his visitors had worn him out and it was time for him to rest.
We headed out to the hospital and got there at about 10:40 p.m., so there was not much time left for visitors. We checked with the nurse to make sure he was awake. "Oh yeah, I was just in there. He's just reading a magazine," she said.
When we got in, she was right--he had his nose in a Fantasy Football magazine someone had brought by today. He was really happy to see us. He is breathing on his own and talking. He is no longer hooked up to the EEG machine at all, so he's just rocking some scraggly beard work and a semi-shaved head resembling Riff Raff from the Rocky Horror Picture Show. He was a little groggy, but mostly just tired. He also had a nasty case of hiccups that was causing him some discomfort, but the nurse had called for some magic drug or wand or pixy dust that was supposed to take care of that. Those hiccups were really making Cy frustrated.
I asked him how he felt about being at Duke hospital, and he responded, "I'm not happy about it." Then, really softly under his breath, he muttered, "Fuckin' Duke." I said that it sounds like this is the best place for him to be right now, and he responded, "I guess so." Someone apparently brought him some kind of Tarheels paraphernalia to keep the balance. (We should keep that coming.) I told him that I had heard from Bo Williams, and he responded, "Bo Williams?! What? How does everyone know?" I told him everyone knew because he was Cy Rawls, and who doesn't love some Cy Rawls, you know what I'm saying?
He was really happy about all the people who had come by to see him so far and all the well wishes we relayed to him. Contrary to what some might have expected, Cy was really psyched to be hearing from so many people. He said it was really cool that so many people know and are coming to visit.
The nurse said that they are working on getting him to a point where he can sit completely upright instead of relatively reclined. They will hopefully have him eating real food by tomorrow night. Right now, he has a teeny feeding tube through his nose. All in all, he looks awesome for someone who had just had the shittiest 36 hours ever. Those who visited him on Sunday will be relieved to see his progress. As far as I know, Carolyn's update about Cy's surgery being Thursday or Friday is still the plan. He had an MRI this morning that came back fine, so the brain appears to be doing just what it's supposed to.
Please continue to visit. He is still in room 4215 at Duke Hospital. Because he is in the ICU, he cannot yet receive flowers, but his parents are taking the flowers that have been sent. He really enjoys seeing everyone. Dave and I will likely be going back tomorrow, so we can print out the messages you all are posting below unless someone else beats me to it.
Man, what can you say? It's Cy Rawls!